How Organ Donation Has Saved My Life

April is Donate Life Month!

 

“You were born with the ability to change someone’s life.  Don’t ever waste it.”  ~Unknown

April is Donate Life Awareness Month, so for the month of April I will be raising awareness and sharing stories about organ donation and how it has saved my life, and the lives of millions of others.

On May 3, 2012, I received my life-saving liver transplant from an anonymous donor, forever changing my life.  I am not only beyond grateful for this second chance at life, but I am also thrilled at the opportunity to make a difference in other people’s lives by inspiring others to become registered organ donors.

Since my liver transplant, which occurred two-years ago (this May 3rd), I have run in five 5Ks and broken 80 several times on the golf course.  I’ve gone to see Justin Timberlake, Bon Jovi, Taylor Swift, Jason Aldean, and FL/GA Line perform live. I had the honor of meeting Mr. Shark Tank, Mark Cuban, at my best friend’s wedding to NHL Dallas Super “Star” Mike Modano. I have also proudly been the American Liver Foundation’s Liver Life Champion in which I have given several public speeches about my story and also filmed a Public Service Announcement in efforts to raise awareness about the life-saving benefits of registering to be an organ/tissue/blood donor.

Mark Cuban came up to me and said, "Hi Mo. Mark Cuban.  Mike has told me so much about you..." at my best friend Allison Micheletti's wedding in Dallas, TX in September of 2013.

Mark Cuban came up to me and said, “Hi Mo. Mark Cuban. Mike has told me so much about you…” at my best friend Allison Micheletti’s wedding in Dallas, TX in September of 2013.

This summer, I will be competing nationally in my first Transplant Games of America, against other transplant recipients and donors in golf, 5K, and two other sporting events of my choice!  Also this summer, my childhood dreams will finally come true when I get to see Justin Timberlake perform live at the Mohegan Sun Arena, in Uncasville, CT 🙂

None of this would be possible if it wasn’t for an anonymous donor who decided one day to check “yes,” yes, I will be a registered organ donor.  That is it, one simple, effortless “yes” which at the time meant probably nothing to him/her, but that one little “yes” has allowed me to do all of the great things that I have mentioned above.

Growing up, I was very determined, hard-working, and had a relentless passion to succeed.  The drive I innately had as a youngster began to fade and transform into uncertainty and doubt mid-way through my collegiate career.  After I graduated from college, I felt very lost in direction and in purpose.  My purpose in life was nothing but unclear, habitually wreaking  havoc within my soul.    Somewhere along the round I had fallen into a repetitive routine of nothingness.  “What am I doing with my life?” I wasn’t pursuing my dreams, and I was not engaging or a part of anything that felt fulfilling and made the heart and core of myself smile.  Maybe perhaps it was no coincidence that I became fatally ill, because honestly, my soul had felt dead for years.

On May 3, 2012 I had my life-saving liver transplant from an anonymous organ donor.

On May 3, 2012 I had my life-saving liver transplant from an anonymous organ donor.

In March of 2012 I diagnosed with stage-4 Liver Cirrhosis, with the initial diagnosis due to Budd Chiari and Factor V Leiden.  I oddly didn’t see my diagnosis as a misfortune, rather, I saw it as an opportunity–an opportunity to change my life, an opportunity to regain my purpose, and an opportunity to impact the lives of others.  My illness resparked my drive and passion to succeed; it lit a fire under my inner competitor, and my inner competitor perceived my illness as a challenge. This wasn’t your routine challenge though, I was facing undoubtedly one of the toughest and most fierce competitors l have ever had to face: I was up against death.

During my liver biopsy at Yale, my liver was accidentally “nicked” which caused unnoticed internally bleeding until one evening on the way to the bathroom, I just collapsed.  “Code Blue! Code Blue!” I could faintly hear as my eyes shut. Several episodes of cardiac arrest ensued with the likelihood that my last days were behind me if a liver match was not found in the next 24 hours.  With the National Average wait-time for a liver match being 361 days, it seemed like I was going to need a miracle to survive. You may not believe in miracles, but You might want to start.

Within 24-hours of my death-defying experience, my medical team at Yale-New Haven started prepping me for liver transplant–word had gotten out there was a potential matching donor for me.  The stars aligned in my favor, and on May 3, 2012, I was a recipient of a last-minute, life-saving liver transplant from an anonymous organ donor.

While it was amazing when I had finally awoken from the anesthesia to find out that I had a liver transplant, I did not have much time to be grateful before complications from the transplant unfolded.  A fungal infection, known as invasive aspergillosis, had manifested within my respiratory system, travelled into my bloodstream, up to my brain, and manifested into a serious and highly fatal infection.  My body was too weak from surgery and immunosuppressive medication to battle the infection at its infancy stages like a “normal” person’s immune system would have, and so it aggressively started to cause destruction in the occipital lobe of my brain.

Invasive aspergillosis in immunosuppressed patients has a an extremely high mortality rate, approaching near 100%.  Despite these odds, my medical team worked very hard at keeping me alive.  I underwent two extremely risky brain surgeries combined with intensive six-seven hours of invasive anti-fungal treatment every night for several months.

Whether the brain surgeries and anti-fungal treatment would save my life was a question that even the top medical surgeons in the country at Yale didn’t know the answer to.  All we could do was give it our best shot, pray for a miracle, and sit back and see how my destiny would unfold.

After the second brain surgery at Yale to remove a fatal fungal I acquired in my brain as a result of a weak immune system post-transplant.

After the second brain surgery at Yale to remove a fatal fungal I acquired in my brain as a result of a weak immune system post-transplant.

According to medical statistics and previous transplant patients who have acquired invasive aspergillosis in their brain, it is utterly unjustifiable as to why I am alive today.  While the statistics and my doctors may not be able to explain why or how I became so ill, so quickly, or even how or why I have survived these several life-threatening illnesses and surgeries all back-to-back-to-back in such a short time, all I do know for certain is that I am thankful.  Thankful for my family, thankful for my friends, and most importantly thankful for my donor, their family, and their generous donation.  The whys and hows of my survival really don’t matter; what matters is that I am alive, I am doing fantastic, and I am ready to change the lives of others.

My story of survival is one that I believe all throughout the world need to hear. I am living-proof of the life-saving benefits of organ donation. Because my anonymous donor was registered as an organ/tissue donor, his/her selfless act saved my life along with saving or enhancing the lives of 14 others on that third day of May. Currently, 18 people die each day because there is a shortage of registered donors on the list.  Eighteen people every day, thousands each year, could be saved and have a second chance like I did, if we all checked “Yes, I want to become a registered organ donor.”  One organ donor can save up to eight lives and enhance the lives of up to 50 people!  A swift check of “yes” is all it takes to saves lives and be a hero to someone and someone’s loved ones.

Before my liver transplant and brain surgeries in May/June of 2012.

Top: Before my liver transplant in May 2012.  Bottom: April 2013, a bridesmaid at my best friend’s wedding, and Sept 2013, cutting the ribbon to kick-off the 2013 the American Liver Foundation’s Liver Life Walk in Stamford, CT.

You might be supportive of organ donation, but are you a registered donor?  As Benjamin Franklin once said, “Don’t put off tomorrow what you can do today.”  Don’t wait, donate. 

For more information about organ donation and becoming a registered donor, please visit these websites:

UNOS-United Network for Organ Sharing  www.unos.org

Donate Life America-www.donatelife.net

Watch my video and see exactly how organ donation has saved my life “The MOtivational MOvie” which shows my two-year journey of having a life-saving liver transplant, brain surgeries, and my life as a survivor.

 

Advertisements

April is Donate Life Awareness Month!

As you may already know, it is my dream to get on The Ellen DeGeneres Show and raise awareness about organ/tissue donation. I have made a short-movie called the “MOtivational MOvie” about my journey of overcoming a life-saving liver transplant and a fatal fungal infection in my brain that I acquired post-transplant (which has nearly a 100% mortality rate in transplant patients).

Organ Donation Month happens to be right around the corner during the month of April, so there is no better time to share this video than now : ) Please help me share “The MOtivational MOvie” so it can get into the hands of Ellen, and also raise awareness about the power of organ donation! Thank you so much for your support and helping me make my dreams come true!

To register to be an organ donor online, please go to www.donatelife.net
Follow the MOtivational MOvement at: www.justsaymo.org

 

Transplant Games of America, Here I Come!

The 2014 Transplant Games of America will be held in Houston, TX July 11-15!

The 2014 Transplant Games of America will be held in Houston, TX July 11-15!

Dearest friends, family, and supporters,

I am overwhelmed with gratitude and excitement to announce that I will be participating in the Transplant Games of America in Houston, TX, July 11-15!  I will be representing the Transplant Team of Connecticut in the Golf, 5K and two other sporting events of my choice!  This life-saving organ donation has given me an opportunity to lead a life with meaning and purpose, honor those affected by transplants, and inspire others to save lives through the generosity of organ donation.

Participating in the Transplant Games just two years after my miraculous transplant and brain surgeries is a dream come true!  I am so excited at this amazing opportunity to travel, meet fellow transplant recipients and donors, and get back to my athletic roots!  In order to make this dream become a reality, I need some serious help fundraising.  This year it will cost an estimated $50,000 to send the Transplant Team of Connecticut to the games.  In order to afford this, I will be setting up a personal donation page to raise a goal of $2,500 for my participation.

If you are interested in donating so I can compete at the Transplant Games of America, please visit my GOFundMe page at http://www.gofundme.com/JustSayMo

The Transplant Team of Connecticut, Inc. is a tax-deductible, 501c(3) non-profit organization.  Personal checks can be mailed to: PO Box 1073 SMS, Fairfield, CT 06825 with the memo: “In support of Monique Gesualdi.”  (Tax ID#08-0778187).

Thank you so much for your continued support and I CAN NOT wait to make you proud at the Transplant Games in July!

Sincerely,

Before and After, March 2012-April 2013.
Mo Gesualdi
Danbury, CT
www.justsaymo.org 
http://www.transplantteamofconnecticut.org/ and “Like” us on Facebook to get updates!