Learn. Live. Hope

Lessons Learned in the ICU

As you may already know, I belong to the internationally recognized club, Toastmasters. From speech #4, “How to Say It’, here is my fifth speech, “Lessons Learned in the ICU” given on February 5, 2013.  For more info on our club, please go tohttp://www.westconntoastmasters.org.

“The greatest wealth is health.”  ~Virgil, Ancient Roman Poet

Good evening Mr. Toastmaster, fellow Toastmasters and honored guests.

As many of you already know, in May of 2012 I was fatally ill; I spent a total of 71 days in the hospital or ICU.  I survived a life-saving liver transplant, and two life-saving brain surgeries to remove a fatal fungal infection in my brain, called invasive aspergillosis.  While spending as much time in the ICU as I did is not something that I wish upon anybody, I did learn three very valuable life lessons from my experiences in the ICU that I’d like to share with you tonight.

The first lesson I learned in the ICU, is that you might not always be able to change your circumstances, but you can always change your attitude, and a positive attitude almost always preserves over a negative attitude.  When you are as sick as I was in the ICU, you can’t always take care of yourself, and when you can’t take care of yourself, that means someone else has to.  Initially, it made me feel uncomfortable to have all of the nurses and doctors poking and prodding at every nook and cranny of my body.  One time in the ICU, I was with my aunt Caryn, and cupping one side over my mouth with my hand I leaned over and whispered to her, “Aunt Caryn, I’m embarrassed they have to wipe my butt.”  Aunt Caryn started laughing.  I was shocked! “Are you seriously laughing? I just told you that I’m embarrassed about them wiping my butt, and you’re laughing?!”  While chuckling she responded, “If it makes you feel any better, you will be wiping mine in 20 years!”  At this time we both started laughing uncontrollably!  While I was humiliated at first by my lack of privacy, it was something that had to be done for my greater well-being. By being surrounded by my hilarious family, I was able to laugh and make light of the very heavy situation going on, which made things appear to not be as severe as they actually were.  Instead of dwelling on all of  the negative that surrounded me, I was able to focus on positive energy, and I think that played a huge part in my survival.

The second lesson I learned while being sick in the ICU, is that life really is about the “little things.”  I learned that we should learn to appreciate the “little things” while we are fortunate to have them, because you just never know when they will no longer be available to you.  When I was in the ICU, there were many things I couldn’t do on my own.  I couldn’t walk on my own, shower on my own; at times I couldn’t even breathe on my own. I was also restricted on what I could and couldn’t eat, and sometimes I couldn’t eat or drink at all.  When I was discharged from the hospital, I was instructed no restaurants, no movie theaters, and no shopping malls for six months.  This meant no Cheesecake Factory, no Loews to catch a movie, and no Target for six months. I am on a life-time restriction of no gluten, no alcohol, no sushi, no salad bars, and, as of now, no driving.  I guess that means no more driving to Ruby Tuesday and hitting up the salad bar before the 6:00 showing of “Lone Survivor” and then driving my friends to go grab an ice cold beer and some sushi after the movie.  I was restricted from common, day-to-day things that we don’t even think twice about; we just do them.  My entire lifestyle has had to change, and I didn’t realize how important some of the “little things” were to me until now, that I can no longer enjoy them.  I wish I had appreciated these “little things” that I was so privileged to experience and enjoy before my illnesses.

The third and final lesson I have learned from my time in the ICU, is that your family is the most important thing you have in your life.  Being sick is a burden.  There’s no way to say it besides it “sucks”.  It sucks for you and it sucks for anyone around you, because as I mentioned before, when you can no longer take care of yourself, that means someone else has to.  While I was sick in the ICU, I learned that some people just couldn’t be bothered.  Those same people who couldn’t be bothered, are sometimes the people you needed the most.  My sickness brought out the best in some people, and it also brought out the absolute worst in others.  I’m only going to talk about the best though.  One of the best things that could have happened to me is when my aunt Caryn and cousin Rocco got on a plane, flew down to SC, picked me up and drove me up here to Connecticut.  One week later I was admitted to Yale receiving the best medical attention I could receive. Without a doubt in my mind, I wouldn’t be alive today if it wasn’t for my aunt Caryn and cousin Rocco coming to get me and bring me closer to some of the most reputable medical facilities in the country.  I learned family is something you should never take for granted.  When all else fails, for me it was my health, my vision, my strength, and my hope, I always had my family.  Because of my family’s love and support, I was able to get my strength, my health, and my hope back and I am making a fantastic recovery, despite the horrific odds against me!

After being ill, I have learned that no matter what circumstances you are given in life, a positive attitude almost always perseveres over a negative attitude.  I have learned that life really is about all of the “little things,” and that your family are the most important people in your life, and with their love and support you can rise above any challenges or adversity that you are faced.  I will leave you with this:

“Some lessons can’t be taught; they simply have to be learned.” ~Jodi Picoult

Learn. Live. Hope, Musical MOtivation

One

Aunt Kia and myself last May 2012
Aunt Kia and myself last May 2012

Today marks the one-year anniversary of my very miraculous liver transplant. The third of May was just one day of many last year in which I was tested mentally and physically so far beyond anything that has previously tested me in my 26 years of life combined. Today I fortunate enough to say that I am a living proof of a miracle.  One of my favorite quotes says, “I’m not a one in a million kind of girl. I’m a once in a lifetime kind of woman,” which I think describes me quite perfectly.

For surviving transplant patients, their transplant anniversary is a very special day that will forever be celebrated. It is a magnificent  and reflective day because it signifies the day you were given life, just like on the day when you were born and first entered the world, but it also celebrates all of the physical, mental, emotional, and spiritual challenges you had to overcome to survive.

I learned it is a recognized tradition of transplant recipients to celebrate the anniversary of their transplant as their “new birthday.” This third day of May 2013, I celebrate this one day, of one year, of hopefully many innumerable days, and many bountiful years with the most MOmentous, MOnumental, meMOrable gift I will ever receive (I love throwing those “Mo’s” in).

Like I said, I’ve already received the greatest gift I could possibly ever imagine, which is the gift of life. There is not many people in this world that can say they have experienced, endured, and persevered what I went through, at my age, or any age for that matter. Twenty-six/twenty-seven is an age where I was/and am old enough to appreciate what a second chance is. It is also an age where I am young enough to really go ahead and start my life fresh and set-out to do things in my life that I might have not done in the past, due to fear of failure.  The goal is to achieve ultimate satisfaction, love, and happiness with myself and others.

My cousin Courtney and my aunt Caryn at Yale-New Haven visiting me in my 52 days at Yale.
My cousin Courtney and my aunt Caryn at Yale-New Haven visiting me during my 52 days at Yale.

Every birthday, you have the chance to make a wish when you blow out the candles, and there is one wish that I do have for this particular birthday. I will tell you that my wish does not involve money or things. It does not involve anything far-fetched or unattainable. But it does involve something so close here, so close to me personally; my family. While I would rather not go into family details I will leave you with the lyrics from U2’s epic ’90s song “One” in which my only wish, birthday or not, is that my family could embrace the lyrics of this song and once again be one single unity, one alliance, one family.

Just a small part of my family that came to visit me in the hospital last May.
Just a small part of my family that came to visit me in the hospital last May. Whether they are in any of these pictures or not, I love you all.

“And I can’t be holding on to what you got when all you got is hurt…
One love. One blood. One life.
You got to do what you should

One life
With each other
Sisters
Brothers

One life
But we’re not the same
We get to
Carry each other
Carry each other

One… life. One.”

Learn. Live. Hope, Musical MOtivation, Uncategorized

Livin’ on a Prayer

In the hospital after my second brain surgery in (June 2012) vs. (January 2013) living it up--visiting familyat the beach in St. Augustine, FL
In the hospital at Yale after my second brain surgery in (June 2012) vs. (January 2013) livin’ it up–visiting family at the beach in St. Augustine, FL

Well, I haven’t posted a blog in awhile, but in one way that is a good thing for me.  It is good because I have been very busy this past month, and the way things are looking, I am going to be pretty busy for a while it seems. I am the kind of person I have do something all of the time; keep moving, keep going.  If there is nothing for me to do, I find something to occupy my time.  When I am home alone, with no mode of transportation, I discover and create ways to keep myself busy.  I put effort into making each moment productive, in a way that can help me better myself physically and/or mentally.

Recently, I have been a huge fan of the work-outs provided on “On Demand” and I will do 2-5 of those workouts throughout the day (depending on how short/long they are).  Killer Core is one of my favorites right now.  I tried out one of the cardio dances, and let’s just say I will probably not be letting anyone see how ridiculous I must look doing that one!  I’ve also been building a website for my aunt’s new organization that we are in the midst of establishing (I can’t divulge much about that now but stayed tuned!). My aunt is very excited about the organization and her big plans, and I am very excited to be her right-hand (wo)man and utilize my writing and computer skills.  We both foresee very big things coming, and I am anxious to see how things pan-out.

The holidays are always a busy time for everyone, but through the holidays and shortly after I had several friends come to visit me, I went on a day-trip to Massachusetts for my cousin’s cheerleading competition, and then I spent two weeks in Florida visiting some of my family.  Just like that, January came, and now it is just about gone.  It was a great month, but I also have so much to look forward to and keep me busy in the next few months.  A productive Mo is a happy Mo.

Four of my really good friends, (whom I’ve met in college at Furman), all currently live within a rather short distance of Boston (just a few hours from me), so we are having a re-union this weekend in Boston, which I am also very excited for!  Besides my family, there is not one thing I love more in the world than my friends.  Those whom I consider my closest friends, I will have their back no matter what, and I hope they would do the same for me.  One of the best characteristics I consider of myself and my fellow Italian family is loyalty.  So if I deem you to be in the “MO-fia” as I call it, you’ll always be in good hands; but if you’re not, better start saying your prayers ; )

Speaking of prayers, the following week after traveling to Boston, I have  Bon Jovi and Taylor Swift concerts to look forward to.  I can’t wait to be Livin’ on a Prayer at Bon Jovi, TSwiftski is one of favorites.  We have a CD my aunt plays in the car, and when Livin’ on a Prayer comes on we crank the music up and we sing that song as loud (and it’s horrible) as we can.  My aunt has told me that when she hears it she thinks of me, and Yale, and how I was “livin’ on a prayer”.

Besides the concerts, I will be doing some travelling, and during which I will get to spend a couple of visits back in Greenville, SC (where I was living when I got ill).  While many of my close friends are dispersed around the country, some of my closet friends still reside in Greenville, so I am thrilled to be able to go and see them.  These won’t be your normal visits;  we’re talking one of my best friend’s bachellorette parties in Charleston, and her wedding in Greenville, SC this spring with a group of us who haven’t all been together in the same place, at the same time, since probably college….I am already anticipating stomach pain from laughing so hard.  I can’t wait to be singing karaoke, and fist pumping, and “livin’ on a prayer” with some of my best friends.  Those are some of the best times I’ve had.

When I get excited about things that are going to happen, I often times begin reflecting on the good ole’ times, and can’t wait to have new good times.  One of our favorite karaoke songs, and probably one of the most popular of all-time is of course, Bon Jovi’s Livin’ on a Prayer.  Arguably, you could say I was; “livin’ on a prayer,” this past year.  I often times find myself thinking a lot, about all sort of things.  Why am I alive? Why are they dead?  What if I did this instead of that?  How can I make this gluten-free recipe delicious? How many days until Justin Timberlake’s new CD comes out?  How is the Cowboy’s defense going to be next year?  Why did so-and-so say that to me?  How am I going to afford health insurance when my Cobra expires?–there is no telling what is going through my head at any given moment.  Things that I question, I try to research and educate myself and by making myself some-what more knowledgeable on the subject.  I usually just end-up attaining a lot of useless facts, and being left with a ton of unanswered questions.

For instance, how did I get a life-saving liver transplant on the very last day I needed one when just one day later I would be dead?  How did I survive not one-but TWO brain surgeries for invasive aspergillosis which has a 80-90% mortality rate?  How could my body endured three MAJOR surgeries with-in a five week span?  How was I able to run the mile in 10:39 last month when I couldn’t even walk in May?  The strangest part is, every negative thing thrown in my way this past spring/summer, not only did I come out alive, but I came out swinging!  I know I strive to work hard to be the best that I can be in everything I do, but that certainly has it’s limitations.  Just like I have my “MO-fia,” there is someone, something, somewhere that has my back.  I am very grateful for what must be some-sort of divine intervention, which I like to think of as my guardian angels, and I don’t think I have just one.

I can’t explain the answer to these questions I asked above with a mathematical equation, or a scientific law.  I also can’t explain it with a religion necessarily either. What I choose to explain it with is a lot of love and a frame-of-mind; a mind-set that is unwilling to compromise, unwilling to lose. I consider myself a believer-I believe in my family, I believe in my friends, I believe in my guardian angels looking over me, and most importantly I believe in myself.  I work hard at my goals, because I believe I can achieve them. I am here now, alive and making great strides, and for that, everyday, I give thanks for everyone’s belief in me, my amazing medical team, my mental and physical strength, my family and friend’s love and support all combined into one big positive force that propelled me to push with all of my might through the numerous, death-defying obstacles in my way.  I have gotten knocked down many times, but when I have gotten up, I only stood taller and stronger.  I lost my pulse four different times, and I am still here, doing better than ever.  I don’t believe there is anything or anybody out there that can knock me down, and keep me down, and whether that is true or not, it doesn’t matter because it is what I believe.  Someone can try, but good-luck with that, you will have the “MO-fia” after you, and I’ll be too busy “livin’ on a prayer”.  : D

“We’ve got to hold on, ready or not.
You live for the fight when it’s all that you’ve got.
Wooaaa, we’re halfway there. Wooaaa livin’ on a prayer.
Take my hand and we’ll make it, I swear. Livin’ on a prayer.”

Learn. Live. Hope

The MOmentum is Just Beginning

Hello family, friends, acquaintances, and everyone in between:

I have been asked by family and friends alike to start several different projects in regards to my personal journey that began this past spring of 2012.  Surviving two life-saving craniotomies after a last minute liver transplant, gives me a lot to talk about.  I am finally well enough to put my words into action, and so here I begin.

My journey has hit every up-and-down, and all-around you can possibly wrap your head around, but, thankfully I am here now today to share my story.  Through everything that has happened to me and my family in the last half-year, I have learned a lot about the true meaning of friendship, family, and what life really is all about.  I plan to share some of my experiences, my thoughts, and my visions (along with the assistance of some of my friends and family who can recall things that I can not).  If my blog does nothing for you, that is okay by me, I’m just here doing my thing, and you have the right to do your thing.  If what I say or do can help you better who you are or what you do in any way, well, then that is well worth writing every bit of this  : )

Much Love,

Mo

I completed the 3 mile Liver Life Walk, held in Stamford CT on September 30, 2012